Noonan Syndrome Association

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Become A Member

What do we do?

We support families and individuals affected by NS with information, webinars with expert medical speakers, Families Day events, and involvement in research projects.

We support health & social care workers and other professionals who have a relevant interest in the condition, with information and guidance.

We facilitate research by participating in projects and ‘pump-priming’ new research, to advance improvements in the understanding, care, and management of the condition.

Do you have specialist skills?

We are seeking non-trustee volunteers, particularly those with skills in fundraising, marketing, social media, or finance/accounting, as these are areas where we most need support to deliver our strategic, communications and fundraising plans. If you have an interest in helping and can spare a few hours a month, please get in touch with the Charity Manager, Sandie, at info@noonansyndrome.org.uk

Become A Member

Membership is free:
NSA Member* (families and individuals directly affected by NS)
Friend of NSA (wider family & friends, other interested supporters, non-UK residents)
Associate Member (health & social care workers and other professionals with an interest in NS).
*Note: our Constitution only allows UK-based NSA Members to vote at our AGM

Join Us

Support

We support individuals, families, and professionals through shared knowledge and experience. We create a safe, caring community to help reduce isolation in our members.

Awareness

We improve awareness of the condition and its impact to improve clinical practice and understanding in health & social care, education and other professional settings.

Research

We facilitate research with international and national networks to advance improvements in the understanding, care, and management of the condition.